Meal accommodation form 504 plan4/11/2024 In other words, a child must have a documented disability that interferes with their ability to learn in the general education classroom. “Major life activities” include things such as caring for one’s self, performing manual tasks, walking, seeing, hearing, speaking, breathing, learning, and working. The law states a child must have “a mental or physical impairment that substantially limits one or more of a person’s major life activities.” In the public school setting, this law ensures students with disabilities have access to the learning environment without barriers. It is a civil rights law intended to end discrimination against people with disabilities. Having the school communicate with your care team can be helpful for the school to understand where you child is physically, what limitations they may have, or general information regarding how Duchenne affects your child specifically.Ī 504 plan refers to Section 504 of the Rehabilitation Act of 1973. ![]() Sign a ROI (Release of Information) form at the beginning of every year if you would like your child’s care team to be able to communicate with the school. If your child will need medication given at school, be sure to provide a prescription from your child’s doctor allowing the nurse to administer.Print and fill out PPMD’s Emergency School Action Plan to include important medical information on one page.Provide the nurse with your child’s neuromuscular care team and/or pediatrician’s contact information, emergency care card, information on medications or trials your child is involved in, and any potential side effects the nurse should be aware of. There are a couple important things to make sure you have in place. Connecting them with resources about Duchenne will help them understand better and take appropriate action should your child become ill or have a medical emergency at school. It is important to meet with the school nurse before the start of the school year. Visit PPMD’s Duchenne Educators Masterclass.The masterclass helps to give your academic team the tools they need to better serve your child both in and out of the classroom It is presented in three age-specific courses covering Duchenne basics, behavioral and learning considerations, physical therapy and occupational therapy recommendations, and more. This free online course for school staff is video based and self-paced. PPMD has also created the Duchenne Educators Masterclass to educate and empower teachers, school-based therapists, counselors, aides, and administrators to better understand and educate their students with Duchenne. We also recommend that teachers familiarize themselves with common learning and behavior issues children with Duchenne and Becker may exhibit. Education Matters: Learning and Behavior in Duchenne.Education Matters: Adaptive PE (written specifically for the Physical Education teacher).In addition to the age-based guides, there are resources available in the areas of Adaptive Physical Education and Learning & Behavior in Duchenne: Education Matters Volume 3: Late Adolescence and Adulthood (ages 16+)Īdaptive Physical Education and Learning & Behavior Guides.Education Matters Volume 2: Late Childhood and Early Adolescence (ages 10-15).Education Matters Volume 1: Diagnosis and Early Childhood (ages 2-9).TIP: To help teachers with key points, families may want to highlight or flag specific sections of the guide as it relates to their child. It covers the basics of Duchenne, specific classroom accommodations, therapy recommendations, and more. This comprehensive guide is divided into three age-based volumes. This should be given to any staff that will be interacting with your child throughout the day (teachers, front desk staff, lunch attendants, school nurse, counselor, recess staff, resource officer, etc) so they can get to know your child a little better before the school year starts.įor more in-depth information on students with Duchenne and Becker in the school setting, parents, and school staff should review PPMD’s Education Matters Guide. You can incorporate a short summary about your child along with a photo that can include topics such as likes/dislikes, personality traits, challenges, etc. ![]() Provide a one-page letter with an overview of Duchenne and Becker muscular dystrophy for the school to keep on file. To help educators understand how to provide quality education for students with Duchenne and Becker, PPMD has created several materials that can facilitate the conversation. Duchenne Action Month & World Duchenne Awareness Dayīefore the school year starts, it is important to educate your child’s teachers and school administrators on Duchenne/Becker and how it can affect your child’s experience at school.PPMD For You: Schedule a One-To-One Meeting for Personalized Support.Knight Hacks: Everyday Tips & Tricks for Families. ![]()
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